Embracing Hobbies with Chronic Illness: 10 Activities to Brighten Your Days

Embracing Hobbies with Chronic Illness: 10 Activities to Brighten Your Days

Living with long-term illness, such as Chronic Fatigue Syndrome or experiencing sudden fatigue/pain episodes, can feel like navigating through a relentless storm. The continuous cycle of fatigue symptoms, doctor's appointments, and the unpredictability of chronic pain can leave us feeling adrift and disconnected from the activities that once brought us joy. As someone who has navigated the challenges of chronic pain and fatigue, I've found that integrating hobbies into my daily routine has been transformative, helping me reclaim moments of joy and peace.

If you're on the lookout for ways to bring some light into your days, consider giving some of these 10 hobbies a try, offering a gentle yet fulfilling escape.

1. Yoga and Gentle Stretching

Engaging in gentle yoga or stretching exercises can alleviate muscle tension, enhance flexibility, and promote relaxation. These activities, supported by mobility aids and adaptive equipment, can be easily tailored to meet the varying energy levels and mobility restrictions of those dealing with chronic pain or fatigue, making them an ideal choice.

2. Journaling

Journaling offers a therapeutic outlet for expressing emotions, tracking symptoms, and reflecting on daily experiences. Whether you're drawn to traditional pen-and-paper journaling or prefer digital platforms, documenting your journey can be a cathartic way to navigate the complexities of chronic illness.

3. Creative Writing

Channel your emotions and creativity into storytelling, poetry, or fiction writing. Diving into creative writing allows you to explore imaginative worlds, express your deepest thoughts, and foster a sense of achievement.

4. Reading

Immersing yourself in a good book can be a welcome respite from the realities of chronic illness. Whether your interests lie in fiction, self-help, or memoirs, reading opens up new perspectives and provides a comforting escape into engaging narratives.

5. Painting or Colouring

Artistic endeavours like painting or colouring can be incredibly soothing and meditative. Dive into your creative side without any pressure or expectations, letting the act of creating art become a source of relaxation and self-expression.

6. Gardening

Connecting with nature through gardening can offer therapeutic and rewarding experiences for those with chronic illnesses. Tending to plants, cultivating a garden bed, or simply appreciating the beauty of flowers can instil a sense of peace and fulfilment.

7. Meditation and Mindfulness

Practising mindfulness and meditation can help cultivate inner calm and resilience in the face of chronic pain and fatigue. Taking time to centre yourself, focusing on your breath, and embracing the present moment can reduce stress and anxiety.

8. Photography

Capture the beauty of the world around you through the lens of a camera or smartphone. Photography encourages you to explore your creativity, focus on moments of wonder, and create tangible memories to cherish.

9. Cooking and Baking

Experimenting in the kitchen can be a delicious and satisfying hobby for individuals with chronic illnesses. Whether you're trying out new recipes, baking sweet treats, or preparing nourishing meals, cooking can be a delightful way to engage your senses and express your culinary skills.

10. Puzzle Solving

Engage your mind and sharpen your cognitive abilities through puzzle-solving activities like crosswords, sudoku, or jigsaw puzzles. These mentally stimulating hobbies offer a fun challenge and an opportunity to keep your brain active.

Final thoughts

Incorporating hobbies into your daily routine can provide a sense of purpose, distraction, and fulfilment amidst the challenges of chronic illness and disability. Remember to listen to your body, pace yourself, and choose activities that bring you genuine joy and relaxation. Embrace the moments of creativity, mindfulness, and connection that hobbies can offer, and let them serve as guiding lights on your journey toward healing and self-discovery.

What hobbies have brought light into your life while navigating chronic illness? Share your experiences and recommendations in the comments below, and let's create a supportive community for those facing similar challenges.

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

Buying Crutches: A Journey of Acceptance and Empowerment

Buying Crutches: A Journey of Acceptance and Empowerment

Buying Crutches: A Journey of Acceptance and Empowerment

As I sit down to write this post I am filled with a mix of emotions - excitement, relief, and a sense of accomplishment. I reached a new milestone in my Chronic Illness journey: buying disability aids such as crutches/walking stick. While this may seem like a small and insignificant purchase to some, for me it marks a new era in my life. It serves as a reminder that my body is failing me.

I remember the day I first considered using crutches, feeling defeated and disheartened by the stark reality they represented. The idea of relying on such a visible aid was a tough pill to swallow, a constant reminder that my condition was not going to improve. 

Support Network

It took a recommendation from my occupational therapist and unwavering encouragement from my husband and close friend to push me towards taking that leap. With their support, I finally mustered the courage to purchase the walking aids - crutches, a symbol of both my physical limitations and my inner strength. Making the decision to prioritize my well-being was a powerful moment of acceptance. It was a pivotal step towards achieving a healthy and fulfilling life.

Living with chronic illness, degenerative spinal issues, ME CFS, and fibromyalgia, has been a rollercoaster ride filled with ups and downs, setbacks and small victories. The decision to start using disability aids such as crutches/walking stick didn't come easily. 

Resistance

For the longest time, I resisted the idea, thinking it symbolised a loss of independence or a sign of weakness. It's a harsh reminder of my condition and the limits it places on me. Don't get me wrong, my body constantly reminds me of its failings, but this walking stick makes it even more apparent. It's a symbol of the struggles I face every day.

However, as my symptoms persisted and mobility became increasingly challenging, I realised that these mobility aids were not a sign of weakness but a tool to help me navigate the world with more ease and hopefully less pain. Making the choice to purchase walking aids: crutches/walking stick was a decision to prioritise my well-being and comfort, rather than succumbing to societal stigma or my own pride.

Self-compassion and self-care

I want to focus on the importance of self-compassion and self-care. It's essential to take care of ourselves, especially when facing mobility challenges. And, embracing mobility aids is not a sign of defeat but a step towards empowerment and improved quality of life. It's okay to ask for help, to adapt your lifestyle to accommodate your needs, and to celebrate each milestone no matter how small it may seem.

By sharing my personal experience and insights, I hope to reach those who may be struggling with similar decisions or transitions in their own journey.

Final Thoughts

As I take each step with my new crutches/walking stick, I am reminded of the strength and resilience that carries me through each day. My journey with chronic illness is not unique, and I find solace in knowing that I am not alone. 

Here's to embracing new milestones, finding moments of joy in the midst of difficulties, and continuing to share our stories with courage and authenticity. 

Thank you for being a part of my journey.

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

Why I Side Step the question when asked How am I today

Why I Side Step the question when asked How am I today

Navigating the challenging path of chronic illness

Navigating the challenging path of chronic illness, such as chronic fatigue syndrome or myalgic encephalomyelitis (MECFS), transforms the simple question of 'How are you today?' into a loaded question. It carries the weight of countless unseen struggles and unpredictable symptoms, making living with chronic fatigue and chronic pain a complex reality to convey.

Living with conditions like ME/CFS and chronic pain means each day presents its own unique battle. Some days, the symptoms of chronic fatigue syndrome, such as overwhelming pain and fatigue, make basic tasks feel insurmountable. Yet, on other days, there might be moments of respite, offering a glimpse of normalcy amidst chronic fatigue and chronic pain.

The question

When faced with the question of how I'm doing, I often sidestep a direct answer, not out of evasion but from a need for self-preservation. The intricacies of living with chronic illness like chronic fatigue syndrome / myalgic encephalomyelitis (MECFS), and the constant fatigue that accompanies it, are hard to explain in a brief exchange without the risk of being misunderstood. Instead, I might offer a vague 'I'm hanging in there' or 'I have good days and bad days,' hoping these responses convey the complex reality of living with MECFS without necessitating a lengthy explanation.

On the flip side, responding with phrases like 'I'm not good' or 'I'm in a lot of pain' is emotionally draining. It's a stark reminder of my battle with chronic fatigue syndrome and myalgic encephalomyelitis (MECFS), highlighting the severe fatigue and the chronic pain. Thus, I'm cautious about sharing this burden, trying to protect my well-being by not dwelling on these overwhelming emotions. 

Keep asking me the question

The concern and care behind the question 'How are you?' warms my heart, knowing that the people around me care about my battle with chronic fatigue syndrome, myalgic encephalomyelitis (MECFS), and living with pain. However, the gap between my outward appearance and inner experience creates a barrier difficult to bridge in casual conversation.

I appreciate it when people inquire about my well-being, showing care for me. While I aim to manage my illness in my own way, I value their concern and hope they understand my approach to handling 'how are you today' questions.

If you ask me how I am and receive a vague response, know it's not a dismissal of your kindness. It's a reflection of the daily intricacies of living with chronic illness, where each day is filled with unseen challenges, but also small victories.x

Final thoughts

Navigating the complex world of chronic illness, including ME/CFS, chronic pain, and fibromyalgia, I often sidestep questions about my wellness and my health. It's not about hiding; it's about maintaining a positive atmosphere and focusing on lighter topics to foster joy and connection, despite the fatigue and challenges.

Sometimes, when feeling particularly down, I might share my struggles, needing someone to acknowledge the fatigue and pain that comes. Yet, I often remind myself not to dwell on these feelings, aiming to stay resilient amidst the challenges.

Thank you for your understanding and for being a supportive presence on this journey.

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

IDENTITY LINGERIE Button up PJs Review

IDENTITY LINGERIE Long Dusty Blue Floral Cotton Pyjamas

As an individual who struggles with ME CFS and chronic pain, it is crucial for me to find comfortable loungewear, particularly when I have to spend more time in my PJs due to the 'PEM crash' days. Today, I am thrilled to share my opinion on the Long Dusty Blue Floral Cotton Pyjamas from IDENTITY LINGERIE, also known as the perfect button-up pjs!

Packaging

The PJs arrived in a stunning satin dust bag, adding a touch of opulence to the unboxing experience. This attention to detail not only enhances the perceived value of the product but also elevates the overall impression of luxury. Such meticulous packaging speaks volumes about the brand's commitment to providing a premium and indulgent experience for its customers, making it a standout choice for those seeking sophisticated and lavish loungewear. It also makes the perfect gift.

Comfort and Style in One

Upon slipping into these pyjamas, I was instantly impressed by the softness of the cotton fabric. The long sleeves and trousers provided the right amount of comfort without feeling restrictive, making them ideal for lounging around the house, especially on my MECFS flare-up days. The dusty blue floral pattern added a touch of feminine charm, perfect for bedtime and/or lazy days at home.

Functionality at Its Best

One of the features I really liked about these pajamas is the convenient button-up design. It makes it effortless to fasten and adjust the garment, allowing me to feel independent and comfortable.

Where to Buy

These dreamy and comfortable pyjamas can be purchased on the IDENTITY LINGERIE website, where you'll find a range of sizes. Simply visit their online store, browse through their collection of cosy loungewear, and add the Long Dusty Blue Floral Cotton Pyjamas to your cart. With just a few clicks, you'll be on your way to enjoying peaceful nights and lazy mornings in the most luxurious sleepwear.

IDENTITY LINGERIE not only sells PJs but also offers an exquisite range of infinity bridesmaid dresses. Crafted from high-quality, luxurious fabrics, the infinity bridesmaid dresses are available in a variety of stunning hues to complement any wedding theme.

Final Thoughts

The Long Dusty Blue Floral Cotton Pyjamas from IDENTITY LINGERIE are an excellent option for anyone seeking comfortable sleepwear. Their blend of comfort, style, and practicality makes them an essential addition to my loungewear collection. Whether I'm unwinding with a good book or practising gentle yoga, these button-up pyjamas have become a regular part of my daily routine

Stay cosy, stay comfortable, and remember to take care of yourself, warrior!

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

Satin PJ Dust bag

Margaret Dabbs Strengthening Treatment and Crystal File Review

Margaret Dabbs Strengthening Treatment and Crystal File Review

As a chronic illness warrior balancing ME CFS, chronic pain, and fibromyalgia, self-care is crucial for me. That's why I was excited to try out the Margaret Dabbs Strengthening Treatment and Crystal File. In this review, I'll share my experience with these products, focusing on how they have helped me care for my nails amidst my health challenges.

Margaret Dabbs Strengthening Treatment

The Margaret Dabbs Strengthening Treatment is much needed for my brittle nails. This treatment is infused with nourishing ingredients that not only strengthen my nails but also hydrate and promote growth. Its lightweight formula leaves a subtle yet nice coat on my nails, making them look shiny and healthy. Moreover, this treatment can also be used as a base coat.

I've incorporated this treatment into my daily routine, applying it in the morning. Over the past week, I've already noticed an improvement in the strength of my nails. They are less prone to breakage and look healthier overall. Plus, the subtle shine the treatment gives is an added bonus!

Crystal File

I’ve been using crystal files for years, and will never go back to using emery boards,

Crystal nail files are unique compared to other nail files. They have a fine abrasive surface that allows you to file your nails in any direction without causing damage to the nails, making it easier to shape and smooth them. The Crystal File also helps strengthen nails by sealing the edge of the nail, which prevents them from splitting. As someone with heightened pain sensitivity, I appreciate how smoothly and easily the file glides, making nail care much more comfortable.

What sets this crystal file apart is its durability. Traditional emery boards would wear out quickly, but the Margaret Dabbs Crystal File will last for a good couple of years. It's a long-lasting investment that continues to deliver salon-quality results at home.

Final Thoughts

Overall, the Margaret Dabbs Strengthening Treatment and Crystal File have found a permanent spot in my nail care routine. Not only do they cater to my specific nail concerns, but they also align with my values of self-care and quality.

I highly recommend giving these products a try. Your nails (and your overall well-being) will thank you!

Give your nails the care they deserve with Margaret Dabbs - because self-care is non-negotiable, especially on the tough days.

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

Simba Hybrid Duvet: The Ultimate Summer and Winter Duvet

Simba Hybrid® Duvet Review

I was thrilled to receive the Simba Hybrid® Duvet for review on my blog.

As I unwrapped it, I could feel its lightweight yet luxurious softness. The duvet, a perfect example of the best summer duvet, boasts an innovative design and technology that promises to keep me both warm and cool throughout the year, making it a versatile addition to any bedding collection. Whether it's a summer double duvet or a superking summer duvet you're after, this summer and winter duvet meets all expectations.

As someone who suffers from Chronic Illness (MECFS), my sleep health is paramount. I've discovered that alongside a comfortable mattress, a duvet that caters to all my needs, like the Simba Hybrid, is essential for a good night's rest. Its innovative design and features have surpassed my expectations, providing the necessary warmth and coolness, especially beneficial for managing my night sweats and temperature fluctuations due to my condition.

Moreover, dealing with MECFS means the weight of a duvet can significantly impact my sleep. A duvet that's too heavy can cause discomfort and further disturb my rest. However, the lightweight nature of the Simba Hybrid has been a godsend, preventing any sensory overload issues during sleep. Its gentle and comforting weight offers just the right amount of pressure, aiding in sleep quality without overwhelming my senses, making it an effective solution for sleep disruption.

Simba Hybrid Duvet

The Simba Hybrid Duvet, crafted with the finest materials, ensures the highest quality sleep experience. Its standout features and materials distinguish it from other duvets on the market, making it a prime choice for anyone considering a mattress topper or even a mattress replacement.

Firstly, the Simba Hybrid Duvet features a unique blend of soft and supportive fibres. This blend strikes the perfect balance of comfort and support.

Additionally, the Simba Hybrid Duvet is ingeniously designed with temperature regulation in mind, making it ideal for anyone struggling with overheating at night. Whether you're a hot sleeper or someone who feels chilly at night, this duvet utilizes cooling mattress technology to wick away moisture and keep you at the perfect temperature.

The materials used in the Simba Hybrid Duvet also deserve mention. The outer cover, made from 100% BCI cotton, is not only soft and breathable but also hypoallergenic, making it suitable for those with allergies or sensitivities. The fill, a combination of microfiber and down, provides the perfect balance of softness and support, incorporating sustainable materials like recycled polyester.

Benefits of using Simba Hybrid Duvet

No more waking up in a sweat or shivering in the middle of the night. Thanks to its temperature control technology, the duvet ensures you stay comfortable throughout the night, adapting to the season or your personal preferences with its climate control capabilities.

Another benefit of the duvet is its superior comfort. The soft and supportive fibres offer a luxurious feel, ensuring a comfortable sleep that makes you feel like you're sleeping on a cloud.

Furthermore, the Simba Hybrid Duvet is not only eco-friendly but also a sustainable choice for the environmentally conscious. It is biodegradable, dissolving in about two years in a landfill environment, and is made from recycled PET bottle fibres, aligning with the growing trend towards sustainable materials.

It came in a convenient 100% recycled storage bag, which I used to pack away my old duvet for future use.

Where to buy

The Simba Hybrid Duvet, a standout product in the Simba product lineup, is available for purchase on the Simba website, as well as from select retailers. Visit the Simba website to find a retailer near you or to shop online. The website offers detailed product descriptions and customer reviews, making it easier to dive into the Simba duvet review and understand why this Simba hybrid duvet review rates it so highly.

Final thoughts

As I snuggled under the duvet, I immediately felt its warmth envelop me, like a gentle hug from a cloud. Yet, despite its cosiness, I also felt a refreshing coolness seeping through, keeping me comfortable all night long. Its advanced features, like temperature regulation and the cooling mattress technology, combined with the unbeatable comfort of a hybrid mattress, truly exceeded my expectations.

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

My Battle with ME: When Fatigue Affects My Vision

My Battle with ME: When Fatigue Affects My Vision

Living with myalgic encephalomyelitis (ME/CFS) has presented me with a variety of challenges, one of the most difficult being the impact on my vision. As with fatigue, a common symptom of ME/CFS, sets in, I often find that my vision becomes blurry or hazy, making it difficult to focus on tasks or even just see clearly. This has been frustrating and sometimes overwhelming, as it adds an extra layer of difficulty to my daily life.

At times, the fatigue from ME/CFS can be so overwhelming that it feels like my eyes are struggling to focus, causing blurred vision or even double vision. This not only makes simple tasks like reading or watching TV difficult, but it can also be quite disorienting and frustrating.

In addition to the physical aspect of my vision being affected by fatigue, a symptom of ME/CFS, I've also noticed that my mental clarity and ability to concentrate on visual tasks are diminished when I'm particularly tired. This can make it hard to process information quickly or make decisions based on visual cues.

The connection between fatigue and vision issues in ME/CFS is not fully understood, but it is believed that the strain of dealing with constant fatigue (mind and body fatigue) can affect the eyes and how they function. Additionally, the brain fog and cognitive difficulties that accompany ME/CFS can further exacerbate vision problems, making it even harder to see clearly.

The Onset of Eye Fatigue

Over time, I’ve noticed a significant deterioration. It's not just the widespread pain and rigidity spasms associated with ME/CFS (Myalgic Encephalomyelitis) - there are many other symptoms. There are days when fatigue overwhelms me so much to the point where my eyes feel unbearably heavy and tired. They start to roll back, pleading for what feels like a shutdown, even at midday –any time of the day.

But, sleeping during daylight hours isn't an option because it disrupts my evening sleep pattern which is critical for my overall health with ME/CFS, further complicating sleep disturbances.

Struggling Against Daytime Naps

This self-set rule of not sleeping during daylight often feels like a huge battle, especially when my body shuts down and my eyes are rolling back. Despite being determined to maintain good sleep health by avoiding daytime naps, sometimes it's just impossible. Sometimes, I find myself succumbing to fatigue (a common symptom of ME/CFS).

No matter how strong-willed I am, my broken body has its own agenda; sometimes I simply have no choice but to sleep, a testament to the relentless fatigue associated with ME/CFS.

Blurred Vision: An Unexpected Impact

Another issue that I've grappled with is blurred vision. Apart from regular eye issues like needing glasses for sight correction, what's concerning now is how rapidly my eyesight seems to get worse, a symptom that's increasingly common with ME/CFS.

To add another layer of complexity, double vision also torments me sporadically, specifically in my right eye accompanied by a deep dull ache - pain almost indescribable in words, highlighting the multifaceted symptoms of ME/CFS.

Post-exertional malaise (PEM), also known as a 'crash’

Post-exertional malaise (PEM) episodes are a debilitating symptom of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). When I experience a PEM episode (aka a 'crash'), it feels like a sudden crash in my energy level and health, which drastically worsens my symptoms. It can be triggered by even minor physical or mental exertion, such as walking a short distance, having a bath or a brief conversation. During a PEM episode, my sensory functions are significantly affected, including my eyesight, which becomes blurry and difficult to focus. These PEM episodes can last for days or even weeks, leaving me feeling exhausted and unable to participate in daily life.

PEM is a debilitating and long-lasting symptom that significantly impacts our daily functioning.

Seeking Medical Insight and Reassurance

I visited the optician twice within a few months due to my blurred vision. Initially, I was told my vision issues were just normal effects of ageing (because I am over 40), but a subsequent visit to different opticians offered more insight. This time, the optician acknowledged that my symptoms would be related to ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), a condition I hadn't considered in my diagnosis journey.

Upon expressing my concerns about ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) potentially causing my deteriorating eye health, the optician surprisingly agreed, mentioning his wife also battles the condition. He reassured me that eye fatigue could indeed be a symptom of ME/CFS, leaving me feeling a mix of reassurance and frustration, knowing my eyesight might not improve.

Final thoughts

To manage the visual symptoms of ME/CFS, I've adopted several coping strategies, including taking regular breaks to rest my eyes, which helps lessen the strain and improve my vision. Adjusting my surroundings for better lighting is another change I've made to ease the symptoms and make living with chronic fatigue syndrome a bit more bearable.

Navigating life with myalgic encephalomyelitis (ME/CFS) is a constant battle, facing new, unwelcome symptoms like persistent fatigue and blurred vision. Each day is about learning to adapt and finding ways to move forward despite the challenges of this chronic illness.

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

Nutrikane J Joint Health Review:

Nutrikane J Joint Health Review

Nutrikane J Joint Health Review:

I recently tried NutriKane J, a supplement designed to support joint health. NutriKane J contains powerful ingredients including collagen and turmeric (curcumin), which are scientifically developed to improve joint health, rejuvenate connective tissue, reduce joint pain, and maintain healthy skin. This advanced formula is said to be a game-changer in the world of dietary supplements, and I was eager to see if it would live up to the hype.

Supplements my new tool

As someone living with Chronic Fatigue Syndrome and chronic pain including stiff joints and muscles, I understand the challenges of managing these conditions daily. I don't expect a miraculous improvement just by incorporating a new supplement into my routine. However, I am genuinely curious and hopeful to see if it might offer some relief or support in the long run. Living with chronic illnesses has taught me to approach potential solutions with an open mind and a patient mind. So here's to trying new things and embracing the journey, even if it is one small step at a time. Supplements are a new tool in my chronic illness journey. I don’t expect them to cure me, I am just after hope, and even a tiny bit of relief would be worth it.

Ingredients

Nutrikane J is a natural product that contains a range of ingredients that have been shown to support joint health. These include:

• Collagen: This is a protein that is found in the connective tissues of the body, including the joints. It is important for maintaining the strength and flexibility of the joints.

• Turmeric (Curcumin): This is a spice that is commonly used in Indian cuisine. It has anti-inflammatory properties and has been shown to help reduce pain and stiffness in the joints.

• Sorghum: This is a gluten-free grain that is high in antioxidants and has been shown to have anti-inflammatory properties.

• Fibre: Nutrikane J contains a range of fibres that help to support gut health and overall well-being.

Dosage Instructions

I’ve been taking one scoop of NutriKane J powder (10g) per day, mixed with either water or juice. You can also add it to smoothies or other foods like porridge. I take it at the same time each day to establish a routine as part of a healthy lifestyle. And, I make sure to drink plenty of water throughout the day to stay hydrated and support the digestive process.

Nutrikane J is a natural product that contains a range of ingredients that have been shown to support joint health. It stands out in the market due to its unique combination of collagen and turmeric.

As with any dietary supplement, it is important to consider the safety profile of NutriKane J before use. NutriKane J is not recommended for use by pregnant or breastfeeding women, children under 18 years of age, or individuals with a known allergy or sensitivity to any of the ingredients. It is also important to consult with a healthcare professional before use if you have any underlying medical conditions or are taking any medications.

Price point

When it comes to the price, NutriKane J is competitively priced in comparison to other joint health supplements. A 30-day supply of NutriKane J costs £39.99 - with free shipping in the UK. You can buy it on the NutriKane website

Final thoughts

The combination of ingredients, including turmeric and black pepper, has been shown in multiple studies to relieve joint pain and improve cartilage function more efficiently.

One of the things I appreciate most about NutriKane J is that it is a supplement product, meaning it provides targeted nutrition to promote joint health. This is in contrast to highly processed foods that can have negative effects on our health. By taking proactive steps towards a healthier lifestyle, we can improve our overall wellness. As someone with chronic illnesses, I am trying to embrace a healthier lifestyle, and Supplements are one of the many initiatives I am taking.

Must-Have Vacation Essentials - Chronic Illness

Importance of Careful Packing for a Stress-Free Vacation

As someone who suffers from chronic illness, when it comes to embarking on a vacation, one cannot underestimate the significance of careful packing. It is an essential step that can make or break the entire trip.

Make a list

Living with a chronic illness means that we have to approach life a little differently. This includes how we pack for trips or vacations. In these situations, forgetting even one crucial item could mean the difference between enjoying our holiday and grappling with discomfort or worse. That’s why making a thoughtful packing list ahead of time becomes so important. That's why meticulous packing is of utmost importance. Thus, if you are like me, I love making lists.

I love a list!

Packing

By taking the time to pack thoughtfully and thoroughly, we travellers with chronic illnesses can ensure that we have everything needed for a seamless and enjoyable vacation experience. From travel documents to personal essentials and medication, each item holds its own significance and contributes to the overall success of the holiday.

It is the small things that often make the biggest difference.

Moreover, careful packing not only helps in avoiding the stress of forgetting important items but also allows travellers with chronic illnesses to maximise holiday enjoyment. When you have everything, you need at your fingertips, you can fully immerse yourself in the experience without any unnecessary distractions or worries. Whether it's a beach vacation, a city trip, or a cruise, having the right items readily available can enhance the overall quality of your holiday.

Thorough packing also ensures that you have all the necessary supplies and comforts to make your vacation as comfortable as possible. From toiletries to clothing options, having a well-packed suitcase means you won't have to compromise on your personal needs and preferences. It allows you to feel at ease and confident throughout the holiday, knowing that you have everything needed to make the most of the time away from home.

Must-Have Travel Essentials for Those Living with Chronic Illness

What are the must-have travel essentials we need to pack? Depending on your specific needs and condition, these might include medical IDs or alert bracelets, prescription and non-prescription medications, cooling towels if heat exacerbates symptoms, Kinaesthetic tape, compression socks for those long flights, walking sticks, pain-relief gadgets...the list goes on!:

Get Your Medical Essentials Ready

As anyone managing a chronic illness knows, these essentials can be lifesavers when it comes to handling symptoms amidst the holiday. Pack all your medications, prescription and non-prescription.

Also, keep a list of all my medications in your handbag while on holiday. This helps to ensure that you have quick access to important information in case of an emergency or if needed to refill a prescription while away from home. 

Having a list of my medications also helps me communicate effectively with healthcare providers or pharmacists if I require medical assistance during my travels. Additionally, in the event that my luggage or medication pillbox is misplaced, having a record of my medications in my handbag - can be invaluable for proving my medical needs and obtaining replacements.

Nutrition & Hydration Are Key

Dehydration and hunger pangs could lead to discomfort and worsened symptoms. Staying hydrated and eating nutritious snacks are crucial in maintaining energy levels throughout the festivities. Pack sufficient refillable water bottles and plenty of healthy snacks.

Self-care During the Holiday

Prioritise self-care every day of your holiday! As someone with ME/CFS (Myalgic encephalomyelitis), rest/pacing is an essential part of managing my chronic illness. Take breaks when needed without feeling guilty about missing out on activities.

Also, resting doesn’t only mean physical relaxation; it's also about mental calm. Practice mindfulness or meditation to help keep stress at bay.

Dress for Comfort

Without compromising on style for your holiday, opt for clothing that prioritises comfort; loose, breathable fabrics that won't irritate or confine you.

Consider heating pads or cooling towels as accessories. For those dealing with chronic conditions, these items aren’t just accessories; they're essential tools for symptom management.

Finding Comfortable and Stylish Clothing Without Sacrificing Fashion

By exploring different fabric options, such as cotton, bamboo, or modal, and seeking out clothing designed with comfort in mind, I've been able to curate a wardrobe that effortlessly blends style and comfort. Embracing a mix of loose-fitting yet fashionable pieces and paying attention to garment details, like stretchy waistbands, has allowed me to strike the perfect balance between style and comfort.

Final Thoughts

Travelling with a chronic illness doesn't mean we can't enjoy ourselves—it just requires a bit more preparation; lists and careful packing.

Remember—the key here is not only being prepared but also maintaining comfort during travel as well as throughout your vacation. After all, holidays are about relaxation and enjoyment! So next time you're going on holiday make sure you pack smartly and don't let anything—especially your chronic illness—hold you back from having a fantastic time!

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS (Myalgic encephalomyelitis), spinal stenosis, chronic pain, and fibromyalgia.

5 Ways Springtime Can Bring Relief and Renewal for Those with Chronic Illness

5 Ways Springtime Can Bring Relief and Renewal for Those with Chronic Illness

Intro

As the chilly winter fades away, the colourful blossoming of spring appears as a season of renewal, providing a feeling of rejuvenation to those struggling with chronic illnesses. This time of change can certainly serve as a source of hope and revitalization for many, including myself.

How Weather Can Affect Chronic Illnesses

As someone who lives with chronic illnesses, I have realized that the weather can significantly impact my health. Changes in temperature, air pressure, and the cold can exacerbate my symptoms, such as chronic joint pain, muscle pain, and fatigue. Meanwhile, excessive heat can lead to dehydration, brain fog and debilitating fatigue. By paying attention to the weather, I can better manage my health.

I keep track of the weather forecast so that I can make necessary adjustments to my daily routine. For example, this helps me manage the effects of cold weather on my chronic illness. For example, I wear warm clothing such as fluffy socks and a blanket to prevent joint pain.

Additionally, in managing the effects of warm weather, I prioritize staying well-hydrated by drinking plenty of water and avoiding sugary. Wearing lightweight, breathable clothing and staying indoors during the hottest parts of the day also helps me stay comfortable. Additionally, using fans or air conditioning to keep my living space cool is essential.

It's important to listen to my body and take breaks/pace when needed, and I find that planning activities for cooler parts of the day can make a significant difference. By being proactive and mindful of these strategies, I can better cope with the impact of weather on my chronic illness.

Spring is here

Below I have explored five ways that the renewal of springtime can uplift spirits and provide solace amidst ongoing chronic illnesses and health challenges.

The Healing Power of Spring Air

As the first signs of spring emerge, it signals a time for renewal, especially for those with chronic illnesses. The shift to warmer weather encourages gentle outdoor activities, which can improve health through mild exercise and movement. Furthermore, it can enhance mental well-being by interrupting the indoor routine and providing a refreshing change of scenery.

Nature’s Colours

Springtime is a showcase of nature's healing power, with its vibrant colours that can help alleviate symptoms of anxiety and depression related to chronic illness. The contrast of blooming flowers and lush green landscapes against the dull winter greys can have a profoundly calming effect.

Fresh Food from Nature’s Kitchen

With the arrival of spring, fresh produce becomes available, which is brimming with essential nutrients that are crucial for managing chronic health conditions. The delights of strawberries and the nutritional wealth of spinach from farmer's markets not only provide a palatable taste but also support overall health and wellness.

Gentle Physical Activity Bathed in Sunshine

Spending time outdoors is not just about sitting on a park bench in the sunshine. It could also mean engaging in light activities such as gardening, which can provide a boost of Vitamin D that is beneficial for people with chronic illnesses. Vitamin D is known to have positive properties that can help alleviate the symptoms of such chronic illnesses.

Spring - A Season of Hope

It is an opportunity for us with chronic illnesses to acknowledge the symbolic significance of spring as a season of renewal and hope. The transition from the cold of winter to the warmth of spring serves as a powerful reminder that change is on the horizon, signalling that better days are within reach.

Spring reminds us that change is not only possible but inevitable and that we should embrace this change with open arms. The blooming of flowers, the chirping of birds, and the longer daylight hours all contribute to the feeling of renewal that spring brings. It is a time to shed the darkness of winter and embrace the light and promise of a new season.

Final thoughts

I am eagerly looking forward to the many advantages that this season brings, as every attempt to care for my health is a step towards a brighter future, even when you are a chronic illness sufferer. Spring is an enchanting season that symbolises the revival of life after a long and harsh winter.

This time of the year provides a perfect opportunity to pause, reflect and recharge, and is particularly for those of us struggling with chronic illnesses. The comforting presence of these beautiful creatures and the vibrant colours around us can bring a sense of hope and joy, and instill in us a deep sense of appreciation for the simple pleasures of life. Every effort in our health during this season is a step forward towards a brighter and happier future. soothing for the make to manage

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

Coping with Chronic Illness: Discovering Joy in Daily Rituals

Coping with Chronic Illness: Discovering Joy in Daily Rituals

The Power of Daily Rituals

Navigating through life with a chronic illness is daunting. The never-ending struggle to complete even the most basic of tasks can leave one feeling defeated and in despair. But amidst this turmoil, I have found solace and empowerment in my daily self-care routine rituals.

Each morning, after savouring my morning cup of tea, I take the time to adorn myself with jewellery, and make-up and spritz on a mist of perfume. Even though I won't be leaving the house, these seemingly insignificant actions hold great significance for me. And, it is important to me. It's not about impressing anyone else, but rather about making myself feel good and put together.

The simple act of applying makeup and putting on some jewellery helps me feel more confident and ready to face the day, even if it's just from the comfort of my own home. Plus, it's a small way to express my style and creativity, which will brighten my mood and boost my overall well-being.

These small self-care rituals serve as reminders that despite my chronic illness, I am still in control and capable of finding moments of joy in my life.

Below I explain why:

Finding Joy in Simple Pleasures

For me, putting on makeup each day is not just about enhancing my appearance; it is a sacred ritual that provides comfort and control when my health refuses to cooperate. The act of carefully applying each product brings a sense of calm and routine to my day. Wearing jewellery adds not only external sparkle but also an internal gleam that reminds me of my strength and resilience.

The Power of Scent and Sparkle

Spraying the scent of a favourite perfume fills me with happiness and creates an aura of positivity around me - an intimate experience that enlightens my senses and even triggers happy memories. And, the scent stays with me throughout the day.

Enhancing Social and Emotional Well-being

Amidst the isolating nature of living with chronic illness, these small rituals also play a crucial role in enhancing my social and emotional well-being. The act of engaging in these routines, even in the confines of my home, allows me to feel more connected to the outside world. The subtle boost in confidence and the sense of normalcy gained from these rituals facilitate more positive social interactions and help me maintain a sense of connection with others, thereby alleviating feelings of loneliness and isolation that often accompany chronic illness.

These practices play a crucial role in helping me cope with the demands of the daily life of living with a Chronic illness and Chronic pain. Without them, I find my mental health inevitably takes a toll.

The small pleasures in life

Acknowledging Bad Days

Of course, there are days (many) when fatigue and debilitating pain take over completely or post-exertional malaise (PEM) hits– times when I find myself unable to indulge even these little pleasures. But no matter how poor my health gets on those overwhelming days; I strive hard not to let it entirely steal the moments of normality and joy these routines provide me.

These small acts of self-care may seem trivial to some, but for me, they are essential in maintaining a sense of peace in an otherwise abnormal existence.

It is my way of reclaiming some semblance of "normal" in a life that is far from ordinary.

Final thoughts

Chronic illness may have drastically altered my life, but through embracing simple joys hidden within daily routines, I can reclaim some control and find fragments of happiness amidst all the adversity. These rituals act as subtle reminders that even in the face of immense challenges, there is still beauty and joy to be found in everyday life.

They serve as subtle reminders that I can still find fragments of happiness. And, they are great for my self-esteem as well as my emotional health.

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

Chronic Illness: Everyday Mundane Things I Struggle With - Arm and Hands

Chronic Illness: Everyday Mundane Things I Struggle With - Arm and Hands

Pain is a universal human experience; however, chronic pain -- the kind that lingers, interrupts your life and refuses to leave -- is a different beast altogether. This is a glimpse into my daily struggle with ME (Myalgic Encephalomyelitis), chronic tennis elbow, and severe cervical spine foraminal narrowing.

ME (Myalgic Encephalomyelitis)torments me significantly with arm issues. The trouble escalates in my right arm due to years of suffering from chronic tennis elbow. But it doesn't end there. I also have severe cervical spine foraminal narrowing which means that the passage where the nerves exit my spine narrows down, compressing those nerves slightly. This condition triggers problems down my right side especially affecting my hand, elbow and shoulder.

Thus, I experience a whole heap of issues with my right arm and hand.

More than pain

It's not only about battling constant intense pain; it's all about managing nerve pain too - neurological nightmares of tingling, heaviness, numbness, spasms etc.

With all my conditions, it restricts my arm and hand use considerably even in seemingly minor ways. For instance, trying to squeeze the liquid gel detergent out of a bottle turns into a painful battle; especially at the point when the bottle is quarter used, when I need to exert pressure on the bottle – something I find myself unable to do, due to pain.  

Such trivial encounters upset me deeply, simply because they highlight my disabilities and limitations so blatantly and brutally.

It means now that when selecting laundry detergent, it becomes a decision based not only on preference but also on physical capability—can I squeeze the gel out? Even handling medication proves challenging as taking pills out from their dispenser or picking them up is more troublesome than it should be. Imagine losing crucial medication on the floor because of my finger dexterity issues, unfortunately, I do this often! Also, using spray bottles, the trigger can be extremely painful for me to keep pressing that trigger.

Makeup application, once an effortless process, now turns into a long, exhausting ordeal due to these limitations. Brushing my teeth becomes incredibly painful or just simply difficult as my arms and hands fatigue quickly and feel extremely heavy and painful. Brushing my hair and attempting to style it (tie it up), is immensely challenging with my arm. With the most upsetting thing is, I am unable to do my daughter’s hair.

I now only buy jersey sports bras as I can step into them and pull a sports bra up, thus, this avoids me having to do the hook-and-eye connection on a normal bra (which I find extremely challenging to do)

I use talk-to-text on my phone/laptop as typing and using my fingers can become quickly painful. Holding the phone to my ear can quickly become too much and too painful.

Constant reminders

Doing buttons-up, tying shoe laces – all these tiny mundane everyday tasks that I took for granted before, are now constantly reminding me that my body is failing me, my body is broken, and I am disabled.

Days that are particularly bad present even more challenges — things like cooking become almost unmanageable. Tasks like cutting fruit and vegetables become impossible. Other activities including sewing can lead to excruciating pain; making me pay for hours or even days afterwards if I push myself too far. 

Although I'm slowly learning to use my left arm/hand more frequently, it doesn’t have full functionality without issues, and it also presents continuous difficulties.

Final thoughts

Living with chronic pain requires constant adaptation and resilience, dealing with both physical discomforts and emotional setbacks. Each day is a new challenge but it also provides opportunities (always trying to keep positive) for learning better ways of managing life despite limitations.

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

Tips on how to parent with a chronic illness

Parenting with a Chronic Illness

Parenting is demanding at the best of times. Throw in my chronic illness, and it can seem like an uphill climb. How do I take care of my children while struggling to take care of myself? How do I balance their needs with my limitations? It's a never-ending cycle of guilt and frustration. But with my determination, adequate strategies, and a dash of self-compassion, I can not only navigate this journey but also create a wholesome environment for my children.

Prioritising self-care – the foundation of my effective parenting

As a parent dealing with a persistent health condition, it's key that I treat myself with kindness. Managing my energy becomes crucial when dealing with the dual responsibility of parenting while battling chronic illness. I don't hesitate to take frequent breaks or delegate tasks if needed. I simplify routines whenever possible - I remember that sometimes less really is more!

Opening communication – key to empowering my children

The next essential step is my approaching the topic of my health condition with my children - but how much do I share with my children about my struggles without burdening them? Will they understand or just worry?  Thus, I provide them with age-appropriate explanations about what I'm going through and how it impacts me daily. By including them in the process, I empower them and reduce their potential worry or stress.

Children are often way more resilient. By being honest about my struggles and inviting their assistance where they can provide it, I encourage their empathy growth and help eliminate uncertainty.

Setting clear boundaries – ensuring security and stability

Boundaries are an important part of any relationship – even more so when I am navigating life with chronic illness. Setting boundaries...it's a delicate balancing act between asking for help and not wanting to rely on my children too much.

Maintaining consistency not only ensures much-needed support for me but also provides an atmosphere of security for the kids — helping them understand their roles within the family dynamic while nurturing their personal development.

Parenting with a chronic illness is constantly navigating conflicts and uncertainties. Still, somehow, we make it work because we love our children and want to provide them with a stable and nurturing environment. But it's not easy, and it takes immense strength and resilience every day.

Planning and organisation

I have developed a plan to stay on top of tasks for my children. Firstly, I prioritise tasks and break them down into manageable steps, ensuring that I don't overwhelm myself. I use a combination of digital tools and old-fashioned pen and paper to organise schedules, appointments, and important dates. Thus, to help me stay on top of everyday tasks, I utilise calendars, to-do lists, and meal plans to streamline daily activities. Moreover, I've learned it's important to be flexible.

Overall, my approach involves careful planning, effective communication, and relying on the support of my husband to ensure that my children are well taken care of despite my chronic illness.

Adjust my parenting style according to my energy levels.

As a parent with a chronic illness, I've learned that adjusting my parenting style according to my energy levels is crucial for both my well-being and my children's upbringing. When my energy levels are low, I need to prioritise self-care and conserve my energy. This might mean engaging in quieter activities with my child, watching a movie, or my daughter and I like to sit and have a chat about her school and hobbies, rather than expending energy on more physically demanding tasks.

By being flexible and adapting my parenting approach based on how I'm feeling, I can ensure that I am still able to provide love and support to my child while managing my chronic illness. This approach not only helps me to avoid a PEM Crash (Post-exertional malaise) but also sets a positive example for my child about the importance of self-care and adaptability in the face of challenges.

Seeking support groups and professional help

This has also been beneficial in managing both my illness and parenting duties. It's okay to ask for help, and taking care of myself ultimately allows me to be a better parent for my children.

Navigating the challenges of parenting

Navigating the challenges of parenting with a chronic illness requires constant self-reflection and adaptation. I've learned to prioritise my well-being without feeling guilty, understanding that taking care of myself is essential for the whole family. Additionally, I've found that seeking out resources and connecting with other parents facing similar circumstances can provide a sense of community and valuable support. By embracing these strategies, I can create a loving and stable environment for my children while managing my chronic illness.

Final thoughts

Parenting with a chronic illness can seem intimidating. But I try and stay positive! As I know, along with my husband we can create a nurturing home for my children, reassuring them that everything will be okay. All that's needed are understanding, open communication, clear boundaries, and most importantly - self-care – I remind myself repeatedly that I'm doing the best I can!

It's a constant struggle to set boundaries and maintain consistency when my health is so unpredictable. But through it all, I have to keep reminding myself that I am doing the best I can for my children, even on the toughest days. And, I am lucky I have the full support of my husband, as well as my mum and my friends.

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

Tips on how to get a good night’s sleep with a chronic illness

Tips on how to get a good night’s sleep with a chronic illness

For those of us dealing with the extra challenges brought about by chronic illness, we find ourselves frequently grappling with sleep disruptions due to symptoms or medication side effects, pain and so much more. When you try to close your eyes, trying to ignore the pain in your body, only to be met with endless tossing and turning. The quest for quality sleep amidst ongoing health battles can be frustrating, upsetting and debilitating.

Sleep, often considered as an escape from everyday worries, becomes elusive when enduring chronic conditions. It's not just about the hours we manage to sleep, but the quality of sleep that counts. There's no underestimating the effects of good sleep on overall well-being and ability to cope with illness symptoms.

The challenge here is that chronic illness often comes with manifestations that interfere with healthy sleep patterns. Symptoms such as constant pain, breathlessness, frequent urination or even anxiety and depression associated with living under prolonged distress can cause significant trouble in falling asleep or maintaining sleep throughout the night. Thus, interrupted sleep or lack of deep restorative sleep over extended periods may exacerbate existing health issues – and often does, I know it certainly does for me, leading to a vicious cycle of symptom aggravation and further sleep disturbance.

This complex connection between chronic illness and sleep makes it all the more important for sufferers to prioritise good sleep hygiene as part of their chronic illness management. Ensuring that we are doing everything in our power to get a decent night’s sleep, can help to alleviate symptoms, aid recovery, and improve our already fragile quality of life.

Navigating Through Night-Time Turbulence

So how do we transition from listless nights to serene slumbers? As daunting as it might seem initially, some strategies can assist us suffers on this front.

As someone who suffers from chronic illnesses and chronic pain. below I’m sharing tips I’ve used to achieve healthier sleeping habits

• I’ve found that it's important to maintain consistency in your bedtime schedule - even during weekends! This way we train our body’s internal clock (your circadian rhythm) towards predictable sleep patterns.

• Create a bedtime wind-down routine, where have a cup of tea, take evening medications and then either do some writing (for my blog) or reading.

• Another tip is managing light exposure - encouraging brightness during the daytime while keeping evenings dim-lit (soft lighting) helps signal your brain about impending bedtime.

• In addition, wearing an eye mask to block out artificial light can prevent you from falling asleep.

• Listen to a relaxation app, one that plays a combination of soft music and gentle voice stories, plays sounds of ocean waves, thunder, rain, etc.

• Avoid afternoon naps. Sometimes, if I’m feeling very fatigued. I’ll have a catnap — just long enough to feel rested, but not so long that I’m unable to fall asleep at bedtime.

Handle middle-of-the-night wake-ups

It is likely caused by an overactive mind, although sleep apnoea or pain could be contributing factors.

• Avoid checking the time frequently. Looking at the clock can increase your alertness, making it harder for you to fall asleep.

• Engage in calming activities for about 30 minutes. You can try colouring books, reading, or listening to audiobooks. Short breathing exercises or meditation can also help promote relaxation.

The Journey to Zzz's

The journey towards better rest isn't a quick route. It requires patience and persistent efforts. You might not see immediate results, but over time, these adjustments could significantly improve your sleep quality amidst battling chronic illness.

Finally, a good night’s sleep is not just a luxury, but a necessity for maintaining overall health - more so when dealing with chronic conditions. With small yet significant steps towards bedtime rituals, reclaiming control over our sleep quality might not be as distant a dream as it appears!

Do you have any sleep time tips you can share?

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

Navigating High Anxiety: Chronic Illness and the Forgotten Task Syndrome

Navigating High Anxiety: Chronic Illness and the Forgotten Task Syndrome

When you've dedicated your entire adult life to being hard-working and dynamic, loved being busy and an active person, and then, without warning, you're faced with the reality of living with chronic illness. The realisation hits like a sudden blow: your lifestyle, your capabilities – all limited by the onset of a chronic illness; now confined by the emergence of a chronic disease. This profound transition brings with it frequent episodes where you feel a void or a sense of being lost.

The Shift

This sudden traumatic transformation at first seemed to disillusion me initially but my body and mind remind me constantly - this is life now with a chronic illness. Understanding that chronic illness becomes a daily reflection, as I navigate through the chronic illness symptoms that shape my new reality.

The Anxiety

When a chronic illness disrupts your life, it can hurl you into intense anxiety and stress. There are moments when I'm gripped by an unsettling sensation of high anxiety, almost mirroring that feeling of something missing, or a 'forgotten' task that remains elusive, highlighting the distressing chronic illness symptoms.

But here's the truth – nothing is missing; nothing has been forgotten.

My New Reality

The reality is, in that moment I’ve not forgotten anything, nothing is missing and I’ve got nothing that needs doing. The only thing I have to remember is the need to concentrate on managing the pain that day, but also concentrate on managing the loneliness that day, and concentrate on managing my expectations of myself.

But this is not your everyday forgetfulness feeling but an incessant nagging feeling that I’ve overlooked something crucial - even when everything seems in order. It's comparable to leaving your house, locking the door but persistently feeling like you left the iron on. For us who are contending with chronic illnesses, this form of anxiety becomes a constant companion.

Chronic illnesses carry along a trail of uncertainty and fear that make navigating through unknown territories pretty challenging. And living with these feelings? Even harder! It brings about grief – for losing control over your body functions or mourning the loss of your previous lifestyle.

I remind myself that it's important for me to recognise these feelings but also permit myself to grieve without guilt! And, that my worth isn't defined solely by how much work I do or how active I am. Chronic illness may have changed the way I live my life, but it doesn't change who I am - a person of inherent value and worth.

Final thought

Finally, another effective coping strategy for managing the anxiety that often accompanies chronic illness is to maintain a positive outlook. Although it might seem challenging amid the ongoing battles with a chronic condition, fostering a sense of optimism is crucial for building resilience and enhancing overall well-being. I'm committed to celebrating even the smallest victories and practising gratitude for all the good that I have, despite the difficulties. Additionally, I prioritise self-care routines that support both physical and mental health, which are essential for stress management and developing robust coping strategies.

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.

The Significance of Restoring Rather Than Replacing My Broken Engagement Ring

The Significance of Restoring Rather Than Replacing My Broken Engagement Ring

An engagement ring is much more than just a piece of jewellery. It holds an entire world of emotions, memories, and dreams for the future within its small shape. The sentimental value that it carries is unique to me, making it truly special. When this ring was first placed on my finger, it became a symbol of our love, commitment, and the beautiful journey we were and continue to embark on together.

As I glance at the engagement ring on my finger, I am reminded of our shared love and dedication. It is not just a perfect ring but also a symbol of the perfect love we share. But as time passed by, life happened and the ring changed. The diamonds fell out, and scratches appeared, reminding me that perfection is not the ultimate goal in a lasting relationship. It is through these imperfections and challenges that our love and commitment only grow stronger.

Loss

The loss of two diamonds represents the hurdles we have overcome as a couple. There were times when we felt like we were falling apart when our flaws seemed insurmountable. However, instead of letting these setbacks define us, we chose to embrace them and work through them together.

Restoring

By restoring my engagement ring, I am not just fixing its physical appearance; I am also symbolically restoring our love and commitment. It is a conscious decision to acknowledge both the good and not-so-good times in our marriage, knowing that they have all contributed to making us stronger. And just like my ring with its missing diamonds, our love has become even more beautiful because of the challenges we have faced head-on.

In a society where perfection is often seen as the ultimate goal in career, appearance or relationships - it's important to remember that real beauty lies in imperfection. Our vulnerabilities and difficult moments are what truly test and strengthen our bonds of love and connection.

A Symbol

As I look at my engagement ring today, I see not just a piece of jewellery but a symbol of the journey my husband and I have taken together - our love story. It reminds me of the countless moments we've shared, both happy and sad, and the obstacles we've overcome. It represents the dedication and hard work that goes into building a lasting relationship.

In a world where material possessions are often equated with value, my engagement ring stands as a reminder that true worth lies in the memories and emotions it holds. It is a tangible reminder of the love we have built and continue to nurture every day. So, I wear this imperfect ring with pride, knowing that it is a testament to the beauty of our marriage and our happiness.

A Reminder

I am constantly reminded that true love is not about finding perfection but instead finding perfection in imperfection. And with my ring on my finger, I am reminded of the incredible journey my husband and I have embarked upon, and the true beauty that lies in an imperfect yet extraordinary love.

Final thoughts

Imperfectly perfect - these two simple words serve as a reminder of the beauty in our marriage. They remind me that true love can be found in the imperfections, and that is something truly special and worth cherishing for a lifetime.

Imperfectly, perfect. 

About me

I am a married mother of four children, in my mid 40's. I run a small business and enjoy writing, which is why I blog. My blog focuses on my experiences of living with chronic illnesses and disabilities such as ME/CFS, spinal stenosis, chronic pain, and fibromyalgia.