10 Practical Tips for Managing Housework with Chronic Illness

Blog Post: 10 Practical Tips for Managing Housework with Chronic Illness

10 Practical Tips for Managing Housework with Chronic Illness

Managing Housework With Chronic Illness

Housework can feel completely different when you're living with chronic illness. With ME/CFS and fibromyalgia, even everyday jobs like putting a load of washing on, changing the bedding or cleaning the bathroom can use far more energy than you expect.

I've learnt the hard way that trying to clean the house the way I used to isn't realistic anymore. If I push through and do too much, I can end up paying for it afterwards with increased pain, exhaustion and post-exertional malaise (PEM).

That's why managing housework with chronic illness isn't about finding the motivation to do more. For me, it's about pacing, prioritising and finding easier ways to get things done without using every bit of energy I have.

Some days I can manage a few household jobs. Other days, keeping on top of the basics is enough. I've had to learn that both are okay.

Over time, I've found a few things that make cleaning and household chores more manageable. These are the practical strategies I use in my own home to reduce the physical strain, conserve energy and hopefully avoid triggering a flare or crash.

Here are 10 ways I manage housework while living with chronic illness.

1. Prioritise What Actually Needs Doing

One of the biggest changes I've had to make is accepting that not every household job has the same importance.

When my energy is limited, I try to focus on what actually needs doing rather than looking around the house and thinking I have to tackle everything at once. Washing might need putting on, the kitchen might need a quick tidy, or there may be something that genuinely can't wait. Other jobs can.

I used to find it difficult seeing things that needed doing and deliberately leaving them. But living with chronic illness means my energy has to be treated as something limited and valuable. Using all of it trying to achieve a perfectly clean house simply isn't worth the physical consequences.

On particularly difficult days, my priority might just be making sure we've eaten and the absolute basics are done. I've learnt that “good enough” really is good enough.

2. Break Housework Into Smaller Tasks

I no longer think of cleaning as one big job.

Instead of deciding that I'm going to “clean the bathroom”, for example, I might clean the sink and then stop. The toilet can be done later. The shower might wait until another day.

Breaking household chores into smaller, more manageable tasks helps me pace myself and gives me opportunities to rest before my body forces me to.

This is particularly important for me because of post-exertional malaise (PEM). With ME/CFS, doing more than my body can tolerate doesn't necessarily cause problems straight away. The payback can come later, when I've already done too much.

That's one of the frustrating things about pacing. On a slightly better day it's tempting to keep going because I feel able to. I've learnt, though, that being able to do something in that moment doesn't always mean my body can afford the energy it costs.

I've written more about why cleaning can trigger pain and PEM and how I approach pacing when housework itself becomes physically difficult.

3. Pace Yourself — Even on the Better Days

Better days are probably when I need to remind myself about pacing the most.

When I've spent days unable to keep up with things, it's incredibly tempting to use a better day to catch up on everything. I'll notice the washing, the floors, the bathroom and all the other little jobs that have accumulated and immediately want to get them done.

The problem is that doing everything because I can often means I pay for it afterwards.

I now try to build rests into housework rather than waiting until I'm exhausted enough to need one. I might do a small job, sit down for a while, and then decide whether I've genuinely got enough energy for something else.

Sometimes I don't.

Pacing housework with chronic illness can mean stopping before I feel like I need to stop. That's something I've found difficult to learn, but it can make the difference between getting one or two things done and triggering a flare or crash that affects the following days.

I'm still not perfect at it. There are days when I overdo things because I want my home sorted, just like anyone else. But I'm getting better at recognising that protecting tomorrow's energy matters just as much as getting today's jobs finished.

4. Sit Down for Jobs Whenever You Can

One of the simplest ways I've found to make housework more manageable is to stop standing when I don't actually need to.

There are quite a few household jobs I can do sitting down. I can fold washing on the bed or sofa, sit at the kitchen table to sort things out, or use a stool for jobs where standing for a long time would drain my energy unnecessarily.

It might seem like a small adjustment, but when you're living with chronic pain and fatigue, all those little bits of energy add up.

I've had to get out of the mindset that there is a “proper” way to do housework. If sitting down means I can get something done without increasing my pain or completely exhausting myself, then that's the right way for me to do it.

Sometimes adapting the task is just as important as deciding whether I should be doing it at all.

5. Use Cleaning Tools That Reduce the Physical Work

I've become much more interested in anything that can make cleaning physically easier.

For me, the best cleaning tools for chronic illness aren't necessarily fancy gadgets. They're simply things that reduce bending, stretching, scrubbing, lifting or the amount of time I need to spend on my feet.

Long-handled cleaning tools can save me from repeatedly bending down. Lightweight equipment is easier for me to move around, and anything that does some of the hard work for me can help conserve a little energy.

I try to think about the part of a household job that causes me the most difficulty. Is it bending? Standing? Grip? Repetitive movement? Carrying something from one room to another?

Once I know what is making the job difficult, I can sometimes find a way of adapting it.

I don't see using aids or easier cleaning methods as cheating. If something allows me to look after my home while putting less strain on my body, that's a win.

6. Share the Household Jobs

I've also had to accept that I can't — and shouldn't — be responsible for everything.

Housework is a shared responsibility in our home. Everyone can contribute in ways that are appropriate for them, whether that's putting things away, helping with washing, loading the dishwasher, tidying their own space or taking responsibility for a regular household job.

Asking for help hasn't always been easy for me. There can be a lot of guilt attached to not being able to do the things you think you should be able to manage.

But chronic illness doesn't disappear because I feel guilty about it.

If I use all my limited energy cleaning because I don't want to ask anyone else to help, there is less energy left for everything else — including actually spending time with my family.

Sharing the workload isn't about giving up my responsibilities. It's about making our home work around the reality of living with chronic illness.

And on the days when my body simply isn't cooperating, being able to say “I can't manage that today” is something I'm learning to be more comfortable with.

7. Make the Most of Your Better Energy Windows

My energy isn't the same throughout the day, and I've learnt that trying to work against my body rarely ends well.

If there is a particular time of day when I tend to have a little more energy, that's when I might tackle something that needs doing. I don't automatically fill that time with housework, but if there is a job I want to get done, it makes sense to do it when my body is more able to cope.

On lower-energy days, that window might be very small.

I also try not to mistake a sudden burst of energy for unlimited energy. That's caught me out plenty of times. Feeling a little better can make me want to catch up on everything I've been unable to do, but that's often when pacing matters most.

I try to use the energy I've got rather than borrowing from tomorrow.

8. Keep Frequently Used Things Within Easy Reach

Reducing unnecessary movement can make a surprising difference.

If I'm constantly bending, stretching, climbing stairs or walking backwards and forwards to get the things I need, I'm using energy before I've even started the actual job.

Where possible, I keep frequently used household and cleaning items somewhere easy to reach. I also try to gather what I need before starting something rather than making repeated trips around the house.

It sounds incredibly simple, but that's the point.

Living with chronic illness has taught me that conserving energy isn't always about making one huge change. Sometimes it's lots of tiny adjustments that remove unnecessary effort from everyday life.

If I can save a little energy here and there, that's energy I might have available for something I actually want to do later.

9. Let Some Things Wait

This is probably one of the hardest lessons I've had to learn.

There will always be another household job that could be done.

There will always be washing. Something will always need wiping, tidying, putting away or sorting out. If I measure whether I've done “enough” by whether everything in the house is finished, I'll never reach that point.

So I've had to become more comfortable with leaving things.

A basket of clean washing can wait to be folded. The floor doesn't always need vacuuming today. A room can be untidy without it being an emergency.

When you're living with ME/CFS, fibromyalgia or another condition that limits your energy, rest isn't something you earn after you've finished every job.

Rest is part of managing the illness.

That's something I still have to remind myself of.

10. Lower the Standard, Not Your Self-Worth

Perhaps the biggest change hasn't been how I clean my home. It's been how I think about it.

I used to have an idea of what I should be able to manage. When my body couldn't keep up with that expectation, it was easy to feel frustrated with myself.

But having a spotless home isn't a measure of how well I'm coping with life.

Some weeks the house is more organised than others. Sometimes I've got washing waiting, things that need putting away and jobs I've been meaning to do for days.

That's simply the reality of living in a home while also living with chronic illness.

I've learnt to lower my expectations when my health requires it rather than continually pushing my body to meet a standard it can't sustain.

My home needs to work for the life and body I actually have, not the one I think I'm supposed to have.

If something has to wait because I need to rest, then it waits.

The house will still be there tomorrow.

A Final Thought

Learning how to manage housework with chronic illness has involved just as much unlearning as learning.

I've had to let go of the idea that a productive day is measured by how much I've managed to get done. I've had to learn to leave jobs unfinished, ask for help, use aids and adaptations, and rest even when there are things around me that still need doing.

I'm still learning.

There are days when I get the balance wrong and do too much. There are also days when very little gets done at all.

What matters to me now is finding ways to make our home work without sacrificing all of my limited energy to maintain it.

If you're struggling to keep on top of housework because of ME/CFS, fibromyalgia or another chronic illness, please remember that your home doesn't need to look perfect to be a home.

Do what matters. Adapt what you can. Accept help when it's available.

And leave the rest for another day.

About me

I am a married mother of four children. One of those children is our granddaughter, for whom we are legal guardians and kinship carers. I run a small business, and I love to write, which is how this blog came to be.

I write about family life, kinship care, and my experiences living with chronic illness and disability, including ME CFS, spinal stenosis, TMJD, chronic pain, and fibromyalgia. I am also very aware that I am doing all of this in my mid forties, which still surprises me some days.

You are not alone here. You are welcome to stay as long as you need.

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